MANAGING LONG-TERM HEALTH CONDITIONS IN PRIMARY CARE: PATIENT PERCEPTIONS AND EXPECTATIONS RELATING TO RECOVERY AND PROGNOSIS

Dates:	20 March 2012
Times:	14:00 - 14:30
What is it:	Seminar

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Speaker: Helen Brooks, Primary Care Group, University of Manchester

Further details: Background Whilst there is a plethora of literature on how patients experience a chronic condition, a focus on prognosis and recovery is less understood and less researched, particularly in comparison with research in the field of mental health. Yet, understanding peoples’ expectations about prognosis and recovery are vital for understanding how and why people are ready, or not, to engage with self management and chronic disease management and may be important in accounting for outcomes. Objectives: • Develop a critical understanding of patients’ perceptions about, and experiences of, prognosis and recovery and how these impact on self-management and living with a chronic disease. • To explore the social patterns (e.g. age, gender, and socio-economic status) related to conceptions, perceptions and expectations related to prognosis and recovery. • To compare and contrast notions of recovery and prognosis for different conditions (e.g. explore the similarities and differences with the mental health literature and variation amongst physical conditions). Methods: The study incorporates a two phased approach. Phase 1 comprised of a re-analysis of two existing qualitative datasets, with a focus on patients’ readiness to discuss recovery and the content of any accounts of recovery and prognosis. Phase 2 used primary data collection and utilised a qualitative approach in which semi-structured interviews with 19 participants were undertaken. A narrative approach to analysis is being undertaken incorporating narrative emplotment of individual stories. Results: Despite being in the early stages, the study has identified different types of narratives relating to prognosis and recovery which appear to differ for different conditions and differing illness trajectories. It also highlighted the importance of expectations and personal experience for constructing narratives. Further analysis and conceptual development will occur during the later stages of the study.