The ethics of research using existing data - analysing without consent
|Dates:||18 June 2018|
|Times:||11:00 - 16:00|
|What is it:||Talk|
|Organiser:||Cathie Marsh Institute for Social Research|
|How much:||Free - Booking is essential|
|Who is it for:||University staff, Adults, Current University students|
Royal Statistical Society and NCRM
Current difficulties of data usage stem from access to data being much greater than consent to use it for research purposes. In social science, previously collected or freely available data have suffered from a lack of ethical scrutiny processes. Meanwhile official data from health and government sources have had legal processes about disclosure of identity and restrictions to specific types of use. To follow up the recent RSS sponsored NCRM event on creating research data policy we will discuss the evolution of these processes and the role for the RSS.
Active participation will be required so please bring questions and concerns.
Madeleine Murtagh (Newcastle)
Madeleine chairs METADAC and will outline their evolving approach to ethics of genetic data including international and interdisciplinary perspective.
Peter Elias (Warwick)
Peter will speak about an ESRC sponsored OECD report he chaired on the ethics of emerging data in social sciences.
Mary Tully (Manchester)
Mary will speak about citizen jury work by Connected Health Cities and Farr, which will include some interaction, subject to technology.
Simon Whitworth (UKSA)
Simon will describe the evolution of the ethics of access to data through ONS and in future through the research provisions of the Digital Economy Act.
Tony Calland (NHS)
Tony chair the confidential advisory group (CAG) of the HRA and will outline the legal and ethical importance of privacy when using existing health data in research.
Lunch will be provided and there is no charge for attendance but registration is required
Price: Free - Booking is essential
Travel and Contact Information
Humanities Bridgeford Street